Well, Holly girl had a test done on her stomach and we hae discovered that she is suffering from Graft Versus Host Disease. The solution is giving her a steroid that will help with the inflamation and encourage her appetite. Which the pill is already working. She started the steroid on Thursday night and she [...]
Can you believe it has been 4 weeks.
Well, Holly is doing good. Her counts have soared in. Unfortunately we aren’t sure why her appetite hasn’t. Everytime she tries to drink she ends up throwing up. The doctors said if she isn’t eating soon they would like to get a biopsy of her stomach lining to [...]
Yahoo … the cells have arrived. So, the doctors explained today the cells will come in and then they will go away .. but once they stick around .. that is when she will be doing really good. So, Holly had absolutely zero white cells and now she has 70. A normal [...]
Well, the days are flowing together, not sure if this is a good thing or not. Holly is in a lot of pain while she waits for her new cells to start growing. She has bleeding mucusitis. Yes, it is as horrible as it sounds. She is on morphine 24/7 right [...]
Well, Lillian the day after surgery was playing at the playground, riding bicycles, and pretty much back to normal. I think I gave her two doses of pain medicines and that was it.
Holly on the other hand is getting the effects of her conditioning week. She has developed mouth sores and sores in [...]
Transplant day was a HUGE success. Lillian started the morning off at 645am. I brought her to the hospital and we were immediately brought back to a private room that you wait in before she goes off to surgery. She was very nervous, but as soon as they brought in her kid-sized [...]
Holly is officially done with her conditioning week. Her little body gets to rest today. She is on round the clock anti-nausea medicine. She is unable to eat and drink on her own, so they are feeding her thru her Hickman line. Her spirits are still up. She is extremely [...]
Well, Holly has made it through 3 days of radiation. She has two more sessions tomorrow (yahoo)! Tomorrow is Day -4. On Day -3 and Day -2 she will have high volumes of chemo. Then on Day -1 she will rest which is Sunday, how fitting. Day 0 (zero) will [...]
Well, we got the word on Monday August 10, Holly will finally be getting her transplant. Poor little tiger. She is so strong! Her strength just empowers me. Monday, August 3rd she will get admitted to Children’s Hospital to begin her ‘conditioning’ week. Her conditioning week is going to be tough [...]
Well … how is everyone doing? I have been wanting to update the website, but everyday seemed to just slip by me. Well, tonight I have finally been able to take a deep sigh of relief.
Last week Holly was all set up to go to transplant and we started to notice she had a [...]