Day + 100 ….
by erin ~ November 19th, 2009. Filed under: The Journey.I can’t believe we have finally reached Day 100. Way to go, Holly! She is doing great. All of her tests so far are turning out to be negative for Graft Versus Host Disease (GVHD). I took a Long Term Care Class yesterday. I am very nervous about leaving our ’security blanket’ – Seattle Cancer Care Alliance and knowing I am going to be her advocate for her health. I told the nurse yesterday I felt as if we were graduating from high school and they were sending us off to college. ;0) She laughed and said maybe we should order caps and gowns.
The kids are excited to be coming home. It will be so good to see friends when get home. I do miss seeing a familiar faces.
I meet with a transfusion team on Friday to discuss all of Holly’s blood transfusions and then I will meet with the doctor and nurse staff to go over a summary of Holly’s tests and the plan for the next year. Tuesday will be a big day for Holly. The doctors have agreed to have her Hick-Man Line removed before we go home. I am excited about the removal just due to the fact her risk for infection will be lower. She is not excited about it because now they will have to use her arm for blood draws. :0( Tuesday will also be her last clinic visit.
We are going to spend Thanksgiving with my brother and his family. It will be so nice to have a holiday with my nieces and my nephew. I am going to miss having my family so close. We all are very sad about leaving our family down here and not being able to drive over to see them when we want! Despite our year down here .. that has been a real treat for us and we are gonna miss that luxury.
Until then .. I am not sure if this will be my last time writing on here. We have begun packing up the apartment. Amazing all the stuff you collect during a year. I didn’t think we had very much stuff down here, but we do. ;0) I will try and write on here before we pack the computer up, but if not we will see you in Ketchikan. Thank you to all who check in on us thru this website, thank you to my good friend Robin for creating this website … and most importantly thanks for all the love, support and prayers we have received. We are so BLESSED.
Much Love
Haines/Caskey Crew
November 19th, 2009 at 7:12 pm
This is all such good news! I am very happy for you all and I admire Holly’s strength! I wish you all a very Happy Thanksgiving! This is truly a time for giving thanks! Looking forward to seeing you when you get home!
Much love,
Heidi
November 20th, 2009 at 2:23 am
Good luck to you all! Take care of that puppy Holly.
Cousin Susie
November 20th, 2009 at 7:07 am
Happy Happy Thanksgiving! And so much to be thankful for. Safe travels and welcome “almost home”!
November 24th, 2009 at 8:00 pm
Hi Beautiful Lil’ Songbird Holly,
Happy – Happy Thanksgiving to all of ya’ll & have a safe and wonderful cruise HOME…………..
I can only imagine the emotions that you & your family are having. ” Have no fear of the future – Be quiet – Be still – and in that stillness comes strength”. And you, Holly have had showed soooooooo many people what the meaning of strength is. I am grateful to have been able to follow your journey, thanks to your mom. I hope to get to meet all of ya’ll. Oh, and Adi’s real mom – Jeanneane was here and we cruised and sang along with your CD. And, now she has one to share with her friends. Adi is here until Sunday. When you & mom are up to it, I would be honored to get you some studio time so you can record some more – one favor – that you sing one of my oldie, but goodie favs. I’m thinking Stevie Nicks
Love & Blessings,
Cherry & Adi
XOXO
November 25th, 2009 at 2:49 pm
oops, the reply I left on this page isn’t showing either! I wonder what I did wrong?-Probably forgot to hit “submit”!! In my excitement on learning you’ll be home on Sunday morning!
I am so excited that in just a few days you and all the rest of the crew will be home!
I LOVE YOU! MISS YOU!
Happy Turkey Day!
Love,
ME
December 31st, 2009 at 6:53 am
Having suffered from non-hodgkins, this was good to see. Thank you for this.
September 14th, 2011 at 5:41 am
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